We are Venkateswara Goud and Usha Rani, a couple from Kurnool, A.P., now residing and working in Bangalore. Our hearts are heavy as we share our story, seeking help for our beloved baby Nivansh, who is just 11 months old and is courageously battling Type-2 SMA (Spinal Muscular Atrophy), This is progressive degrading disease which impacts his ability to sit, move and breathe.
 
Our baby Nivansh struggles daily to breathe and move and he requires specialized treatments regularly like BiPAP, physiotherapy, and essential medications. But, there is hope - a gene therapy named ZOLGENSMA can save him from the clutches of this life-threatening condition. This treatment could be the key to saving our son’s life, but this costs $2.1 million (₹ 17.5 cr), and it is a huge amount and we cannot afford it. Also, time is of the essence, as the gene therapy must be given before Nivansh turns 2.
 
So, in this desperate hour, we turn to you, our compassionate community, and seek your support. Your contribution can help our baby Nivansh get the treatment he needs so that he can walk, laugh, and enjoy the little happy moments of childhood.